Research Strategies to Optimize Health Care for People With Multiple Chronic Conditions (MCC) From Populations Experiencing Health Disparities

The prevalence of multiple chronic conditions (MCC) has increased significantly over the past 20 years among U.S. racial and ethnic minority populations. This is especially true for those living below the poverty line or in underserved rural areas.

During this unique exploration of strategies for conducting multilevel research on MCC among populations experiencing health disparities, speakers will:

• Identify feasible methodologies and barriers to conducting and disseminating the range of research on MCC.
• Discuss data access, equity, and analytical challenges and potential solutions.
• Explore critical collaborations needed to successfully conduct such research.

Agenda

Day 1: Monday, March 18

Times are listed in Eastern Daylight Time (UTC -4)

10:00 a.m. – 10:45 a.m.

Welcome Remarks and Overview
Workshop Committee

Introductory Remarks
Eliseo J. Pérez-Stable, M.D., NIMHD Director

Keynote Session: State of the Science: Conducting Research on Multiple Chronic Conditions to Advance Health Equity
Marshall Chin, M.D., M.P.H., University of Chicago

Keynote Session Q&A
Moderator: Yewande A. Oladeinde, Ph.D., NIMHD

Session I: Conducting MCC Research: Challenges Within Health Care and Community Settings
Moderator: Dolly P. White, M.D., M.S.C.R., NIMHD

10:45 a.m. – 12:02 p.m.

Comprehensive Care for Patients With Multiple Chronic Conditions Experiencing Health Disparities: Barriers to Translating Research Into Practice
David Meltzer, M.D., Ph.D., University of Chicago

Racism as a Fundamental Cause of Chronic Disease
Michele Allen, M.D., M.S., University of Minnesota Program in Health Disparities Research

Importance of a Life Course Perspective for Addressing Multiple Chronic Conditions
Elbert Huang, M.D., M.P.H., University of Chicago

Using Implementation Science to Promote Cancer Health Equity: Integrating Multiple Chronic Condition Care From Cancer Prevention Through Survivorship
Denalee M. O’Malley, Ph.D., M.S.W., Rutgers RWJ Medical School

Care in the Face of Complexity in Indian Health
Bruce Finke, M.D., Indian Health Service

12:02 p.m. – 12:27 p.m.
 

Session I – Q&A/Wrap-Up

12:27 p.m. – 1:27 p.m.

Lunch Break

Session II: Innovative Models of Health Care for MCCs: Lessons Learned From Research
Moderator: Lynne S. Padgett, Ph.D., FAPOS, NIMHD

12:27 p.m. – 2:44 p.m.

Effectiveness of a Pharmacist-Led Primary Care Intervention Among Black and Hispanic Patients With Diabetes and MCC: Challenges and Lessons Learned
Carol M. Mangione, M.D., M.S.P.H., UCLA David Geffen School of Medicine

DECIDETM Self-Management Support Program: An Approach to Empowering Persons Managing Multiple Chronic Conditions
Stephanie L. Fitzpatrick, Ph.D., Northwell Health Zucker School of Medicine

Optimizing Health Care for African American Adults With Chronic Kidney Disease and Type 2 Diabetes Experiencing Multidimensional Adversity: Research Strategies, Methods and Lessons Learned
Mukoso N. Ozieh, M.D., M.S.C.R., Medical College of Wisconsin

Opportunities and Challenges With Implementation of Patient Priorities Care – North Carolina
Crystal Wiley Cené, M.D., M.P.H., FAHA, UCSD Health

Care Coordination Along the Health Care Continuum: Reinventing Primary Care With Self-Service
Joseph Scalea, M.D., Medical University of South Carolina and Massachusetts Institute of Technology

2:44 p.m. – 3:09 p.m.

Session II – Q&A/Wrap-Up

Plenary Session I
Moderator: Larissa Avilés-Santa, M.D., M.P.H., FACP, FACE, NIMHD

3:09 p.m. – 3:31 p.m.

Advancing Health Equity Among People at Risk for or Living with Multiple Chronic Conditions: The Role of Learning Health Systems
Arlene S. Bierman, M.D., M.S., Agency for Healthcare Research and Quality

3:31 p.m. – 3:36 p.m.

Plenary Session I – Q&A

3:36 p.m. – 3:40 p.m.

Break/Transition to Breakout Sessions

Concurrent Breakout Sessions

3:40 p.m. – 4:30 p.m.

Room A: Brainstorming Solutions to Challenges Previously Described During the Panel Discussion

Room B: Discussion of Optimal Research Methods, Best Practices Related to Implementation or Integration of Multiple Guidelines of Care for Patients With MCCs

4:30 p.m. – 4:55 p.m.

Report-Out From Breakout Groups and Discussions

4:55 p.m. – 5:00 p.m.

Day 1 Summary
Workshop Committee

5:00 p.m.

Adjourn

Day 2: Monday, March 19

Times are listed in Eastern Daylight Time (UTC -4)

Session III: Research Design and Data Collection Within the Context of the Health Care Continuum
Moderator: Michelle Doose, Ph.D., M.P.H., NCI

10:00 a.m. – 11:17 a.m.

Social Determinants of Health Common Data Elements in the NIMHD Health Equity Action Network (HEAN)
Stuart A. Gansky, Dr.P.H., University of California, San Francisco

Implementing Interventions in the Rural South to Address Cardiometabolic Disparities: Challenges and Lesson Learned
Andrea Cherrington, M.D., M.P.H., University of Alabama at Birmingham

Optimizing Care Through Optimizing Patient-Clinician Collaboration: A Methodological Perspective
Marleen Kunneman, Ph.D., Leiden University Medical Center (Leiden, the Netherlands) and Mayo Clinic (Rochester, NY)

Unlocking Insights: Making Comparative Effectiveness Research Count in Real-World Settings
Kelly Williams, Ph.D., M.P.H., UPMC Center for High-Value Health Care

A Culturally Congruent Health Care to Reducing Health Disparities in Indigenous Populations
Vallabh (Raj) Shah, Ph.D., M.S., FASN, University of New Mexico School of Medicine

11:17 a.m. – 11:37 a.m.

Session III – Q&A/Wrap-Up

Session IV: Research Methods to Advance Multilevel and Intersectional Research on MCCs
Moderators:
Carolina Solis Sanabria, M.D., M.P.H., FACS
Rada K. Dagher, Ph.D., M.P.H.

11:37 a.m. – 12:09 p.m.

Complexity and Research in Patients With Multiple Chronic Diseases – A Team Approach
Mark S. Johnson, M.D., M.P.H., Howard University

Building a Multidisciplinary Team for Conducting MCC Research: Incarceration and Cancer Care as a Case Study
Cary P. Gross, M.D., Yale School of Medicine and Cancer Outcomes Public Policy and Effectiveness Research (COPPER) Center

12:09 p.m. – 1:09 p.m.

Lunch Break

1:09 p.m. – 1:39 p.m.

It Takes a Village (of Scientists and Patients) to Conduct Impactful MCC Research
Matthew L. Maciejewski, Ph.D., Duke University and Durham VA HSR&D

Rural Health Research on Multiple Chronic Conditions: Did COVID-19 or Can Rural Primary Care Help the MCC Agenda?
K. Allen Greiner, M.D., M.P.H., University of Kansas Medical Center

1:39 p.m. – 1:59 p.m.

Session IV – Q&A/Wrap-Up

Session V: Analytical Challenges
Moderator: Sundania J. W. Wonnum, Ph.D., BCD, LCSW, NIMHD

1:59 p.m. – 3:01 p.m.

Methodologic Challenges and Approaches to Studying Latino Health Equity in Multiple Chronic Conditions Using Electronic Health Records
John Heintzman, M.D., M.P.H., Oregon Health and Science University

Data Analytic Considerations in Optimizing for Persons With Multiple Chronic Conditions (MCC) in Research and Health Care Delivery
Daniel F. Sarpong, Ph.D., Yale University School of Medicine Office of Health Equity Research

Data in Determines Data Out – Community-Engaged Approaches to Inform Research in Multiple Chronic Conditions Cancer as an Example
Manali I. Patel, M.D., M.P.H., M.S., FASCO, Stanford University School of Medicine

Health Equity in Patients With Multiple Chronic Conditions: How Can We Help Cancer Patients Manage Their Comorbid Conditions?
Laura C. Pinheiro, Ph.D., M.P.H., Weill Cornell Medicine

3:01 p.m. – 3:21 p.m.

Session V – Q&A/Wrap-Up

3:21 p.m. – 3:31 p.m.

Break

Session VI: Unique Settings and Populations
Moderator: Larissa Avilés-Santa, M.D., M.P.H., FACP, FACE

3:31 p.m. – 4:03 p.m.

Studying Puerto Rico Health Care: Challenges and Opportunities
Alexandra Rivera-González, Ph.D., M.P.H., University of California, Merced

Equitable Care for Multiple Chronic Conditions – Opportunities From the Veterans Health Administration
Jessica Y. Breland, Ph.D., Center for Innovation to Implementation, VA Palo Alto Health Care System

April Mohanty, Ph.D., M.P.H., Informatics Decision-Enhancement and Analytics Sciences Center, VA Salt Lake City Health Care System

4:03 p.m. – 4:18 p.m.

Session VI – Q&A/Wrap-Up

Plenary Session II: A Way Forward
Moderator: Yewande A. Oladeinde, Ph.D., NIMHD

4:18 p.m. – 4:40 p.m.

Moving the Needle in Health Equity: From Academia High Heels to Real-World Muddy Boots
Sivan Spitzer, Ph.D., M.A., Azrieli Faculty of Medicine, Bar-Ilan University, Israel

4:40 p.m. – 4:45 p.m.

Plenary Session II – Q&A

4:45 p.m. – 5:00 p.m.

Day 2 Reflections
Workshop Committee

5:00 p.m.

Adjourn